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Colostomy Assoc. (UK) Tidings #24 Out Now

Issue #24 (Winter 2011) of the Colostomy Association‘s excellent Tidings member magazine is out now. If you’ve not got a copy on it’s way and you live in the UK then contact the CA and they will happily send you one.

Inside this issue:

  • CA News
  • Latest Stoma Care Products & Services
  • Mary’s Story
  • Pathways to a Colostomy (Faye’s Journey)
  • Breakaway Latest News
  • Betty’s Story
  • Open Day Report
  • Diet… About Constipation
  • Irrigation and You
  • Disposal – Readers Reactions

For your copy contact the CA via their website, or phone them on 0118 939 1537

External Links:
Colostomy Association UK Website: http://www.colostomyassociation.org.uk

This content has been Digiproved © 2012 Ostomyland

The end of the colostomy? It APPEARs to be true.

Yesterday, a British newspaper – the Daily Mail – reported about a new operation which could possibly spell the end of the Colostomy as we know it in the future.

Named the Anterior Perineal Plane for ultra-low Anterior Resection (APPEAR for short – wheres the “e” come from?), the operation involves removing the diseased part of the bowel and surgically altering part of the remaining bowel to form a pouch to recreate the rectum.

Pioneered by Professor Norman Williams of Barts hospital, London, the operation takes five to six hours to perform. However the operation is not suitable for those with advanced bowel cancer, or severely damaged sphincter muscles, but for those who did have the operation as part of a multi-centre trial performed around the world, two thirds of the patients reported a success with normal function resuming within six months, and for some it was as little as two months.

You can find the article on the Daily Mail website. And for more information visit Bowel Cancer Research Organisation website, or if in the UK phone them on: 020 7882 8749.

Useful Links:
Source Article about APPEAR on the Daily Mail website:
http://www.dailymail.co.uk/health/article-2070375/New-bowel-operation-replace-colostomies.html
Bowel Cancer Research Organisation (UK):
http://www.bowelcancerresearch.org/

Update: 08 December 2011 – 10am.

This story has certainly caused a stir amongst our readers both here on the Oland community and on our Facebook group, and various other ostomy websites around the world too.

One question was raised which was not answered by the article: Whats the difference between the APPEAR procedure, and the current J-Pouch procedure. Now, Im no medical student, and I have no personal experience of the J Pouch other than being in the same hospital ward bay as people having it, or having ileostomies as a result of a pouch failure. So, I decided to do a search via the various medical research database sites to try and find the answer, and to be honest, very little freely available information is available. Theres only a couple of articles registered about the trial so far, and it costs over $50 to buy a copy, so all we have to go on is the various extracts.

Here are some quotes and links to the extracts I found, including links to where you can buy the article if you are interested in it yourself. From what I’ve read it seems that the operation would still be available even if you didnt qualify for a JPouch normally. So it gives more options for people I guess. If you do buy the article, and you find out what the differences are between the APPEAR procedure and a JPouch please do write in and let me know! You can email me here. The article extracts and page links are available below. (Click on Continue Reading… if it appears)

Continue reading

Thanks CA for a great day!

Ostomyland would just like to thank the UK Colostomy Association for a great open day yesterday at Weetwood Hall, Leeds. We had an exhibition table there which gave us a chance to meet some of 100 attendees members whom were local to the event, as well as new ostomates. It also gave us a chance to further raise our profile within the industry and specifically with the various ostomy companies whom also had stands and tables at the event. We hope to have some photos to post from the event in the next few days.

We cannot thank the CA Trustees enough for the warm welcome they gave us to the event, and how they made us feel just as important as the huge companies. So, thanks CA, we really appreciate it! :D

External Links:
Colostomy Association (UK):
http://www.colostomyassociation.org.uk/

This content has been Digiproved © 2011 Ostomyland

Colostomy Association Open Day (Leeds, Oct 15th)

Tomorrow the UK Colostomy Association is hosting an open day in Leeds featuring guest speakers and exhibitors and tables from various ostomy related companies and services.

Ostomyland will be there as we have an exhibit table booked. This will be our second year at the CA Open Day and like last year we are looking forward to meeting many people, and hopefully spreading the word about Ostomyland a bit more around the patient community and manufacturers, and of course, offering advice and support to anyone whom requests it.

If you are at the open day please do pop by and say hi. Oland community moderator Sarah will be there, and hopefully senior admin Kathy will be around too. The open day starts at 9am and closes at 3pm. There are various speakers lined up for the day. The event is being held at Weetwood Hall, Leeds LS16. For full details please see the colostomy association website.

External Links:
Colostomy Association Website: http://www.colostomyassociation.org.uk

This content has been Digiproved © 2011 Ostomyland

New Content: New Ostomists top tips added

More Ostomates top tips have been added to the “Ostomists Top Tips” page of the Lifestyle Guide section (Chapter 23). Thank you to Higgi’s Girl for sending them in.

You can see Higgi’s Girl’s tips at the bottom of the page. And you can find the link to it on the left hand side menu, under the “Lifestyle Guide” section, or alternatively you can click the link below to be taken directly to it.

Lifestyle Guide: Ch23 – Ostomist’s Top Tips

Fuzzbutt’s Top Tip: #1

Fuzzbutt’s Top Tip: #1

Colostomy Lifestyle Guide – downloadable PDF!

“Living with a Colostomy” – the book version of the Ostomyland Lifestyle Guide, has been massively updated and is now available to download as a .pdf file, which can be opened in Adobe Reader.

Why download the file, when the pages are on the site to read? Well, maybe someone would like to download and print it out to give to a family member, or friend, who is in hospital. Or quite often we get Ostomates downloading it and giving it to their family so that they can understand what a Colostomy is all about.

Now in colour, Version 2.1 of the download features all the chapters you can find on the website, as well as space for personal notes, and a medical contacts section where you can keep all your important Ostomy contacts together. For example family doctor/surgeon contact details, ostomy product codes and descriptions and more!

The new Lifestyle Guide Download page can be found here, and is listed in the guides menu on the left hand side of the page.

I hope you enjoy this updated version of the download guide.

Jason D.
Webmaster & Colostomate
www.ostomyland.com

Ostomyland’s Colostomy Lifestyle Guide Preview Screenshot Graphic